April 21, 2022

Tips for delivering difficult pediatric diagnoses

"I remember our first day in the cystic fibrosis clinic like it was yesterday. I cried in the parking garage and struggled to nurse my daughter in the waiting room. And then it happened. That moment is forever etched in my mind. The pediatric...


"I remember our first day in the cystic fibrosis clinic like it was yesterday. I cried in the parking garage and struggled to nurse my daughter in the waiting room. And then it happened. That moment is forever etched in my mind. The pediatric pulmonologist took my hands, looked me in the eye, and said, 'Your daughter is going to live a long and full life.' She went on to say that it was her job as a physician and my role as a parent to help enable this.

At that moment, she recognized me as a mother and earned my trust. She forged the beginning of a partnership that would continue for years to come. And to this day, her words remain imprinted on my heart.

I’ve spoken with hundreds of families like mine, and nearly all remember the exact moment their lives separated into 'before' and 'after.' That is why it is so important for physicians to deliver pediatric diagnoses with intention. Words and actions matter big time."

Laura Spiegel is founder and president, Paint Her in Color.

She shares her story and discusses her KevinMD article, "10 tips for delivering difficult pediatric diagnoses."

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